The Administrator is responsible for assisting the Executive Directors in managing the day-to-day activities of the Ehlers-Danlos Society.
Primary phone coverage (first to answer all incoming calls)
Prepare and mail all packages
Sort and distribute incoming mail
Oversee all aspects of merchandise orders including inventory and maintenance of inventory
Oversee all administrative aspects of meetings and events including registrations, confirmations, badges, certificates, evaluations, preparation and shipping of onsite materials, etc.
Oversee scheduling of board and committee meetings, and prepare materials and take minutes
Oversee donor relationship management, including processing donations, sending receipts and acknowledgements, and managing the donor database.
Assist with bookkeeping/accounting functions
Inventory and track off site storage
May be called upon to assist with special projects and assume responsibility for the development, administration, and promotion of specific projects, as required
Perform other duties as assigned
Currently the Ehlers-Danlos Society staff work remotely, but an office search is in progress in the Baltimore, Maryland area with an expected completion date of late 2018 to early 2019. The Administrator will be expected to work remotely until the Baltimore area office is established.
The Administrator is responsible to the Executive Directors for all of the duties and responsibilities listed above and for other duties that the Directors may assign during the duration of the employment. Because of his/her involvement in matters related to their responsibilities the Administrator would also be required to communicate frequently with other staff members, as well as the Board of Directors.
Must have experience in office procedures and use of office equipment. Must have the ability to communicate accurately and clearly both orally and in writing; pleasant telephone manner; customer service oriented, proactive approach to work. Strong knowledge of computers and donor management systems is desirable. Must be alert and resourceful. Must be an effective organizer and pay close attention to detail. Must have the ability to work with and adapt to all kinds of people. Must exhibit patience and perseverance. Must be able to maintain corporate confidentiality. Must have superior organizational skills and accuracy. Excellent problem solving and people skills also required.
Telecommuting is allowed.
Additional Salary Information: Salary commiserate with experience.
The Ehlers-Danlos Society is a global community of patients, caregivers, health care professionals, and supporters, dedicated to saving and improving the lives of those affected by the Ehlers-Danlos syndromes, hypermobility spectrum disorders, and related conditions.
We support collaborative research and education initiatives, awareness campaigns, advocacy, community-building, and care for the ...EDS and HSD population.
Our goals are world-wide awareness—and a better quality of life for all who suffer from these conditions. Research is at the center of what we do, so that one day we will have a cure. Our strength begins with hope.
The Ehlers-Danlos Society was originally established as a nonprofit organization in 1985 as the Ehlers-Danlos National Foundation (EDNF) by Nancy Hanna Rogowski (1957–1995).